Disease and disorder specific nonprofits: pay, overhead and reserves by state
2,961 disease and disorder specific organizations with revenue USD 100k-5M, latest Form 990 or 990-EZ e-filed in 2025-2026. Median program share 82.1%, management and general 11.3%, fundraising 0.7%, reserves 12.5 months; 47.4% report paying at least one officer or key employee.
Source: IRS Form 990 / 990-EZ e-file releases (public domain) joined with the Exempt Organizations Business Master File for NTEE codes; one latest return per EIN; universe = revenue USD 100k-5M, latest Form 990 or 990-EZ e-filed in 2025-2026, expenses above zero, 50 states + DC. Medians over filers reporting the field; management and fundraising shares count Form 990 filers only (990-EZ has no split). Data as of 2026-10-31.
Medians here (bar) vs all 226,109 filers nationally (mark):
| Revenue band | Filers | Pay anyone | 25th pct | Median | 75th pct |
|---|---|---|---|---|---|
| USD 100k-250k | 1,011 | 27% | $22,800 | $42,193 | $63,000 |
| USD 250k-500k | 672 | 42% | $45,480 | $70,000 | $92,465 |
| USD 500k-1M | 508 | 55% | $66,300 | $91,259 | $118,742 |
| USD 1M-5M | 770 | 74% | $99,478 | $134,894 | $184,439 |
Top officer = the highest reportable compensation from the organization among the officers, directors, key and highest-compensated employees listed on Form 990 Part VII or 990-EZ Part IV (title and amount only, never a name). Percentiles cover filers that pay anyone; a dash means fewer than 10 of them. Benefits and deferred pay excluded.
By state
States with 20 or more filers link to a page with the full band table and bars.
| State | Filers | Program median | Reserves (mo) | Top pay median, 500k-1M |
|---|---|---|---|---|
| Alabama | 49 | 84.3% | 9.7 | — |
| Alaska | 7 | — | — | — |
| Arizona | 51 | 82.1% | 9.2 | — |
| Arkansas | 22 | 68.6% | 9.8 | — |
| California | 325 | 82.6% | 12.5 | $90,406 |
| Colorado | 56 | 83.1% | 10.5 | — |
| Connecticut | 38 | 82.3% | 10.3 | — |
| Delaware | 13 | — | — | — |
| District of Columbia | 38 | 75.6% | 10.2 | — |
| Florida | 186 | 84.9% | 11.6 | — |
| Georgia | 84 | 82.6% | 13.0 | $78,251 |
| Hawaii | 13 | — | — | — |
| Idaho | 9 | — | — | — |
| Illinois | 129 | 80.0% | 16.3 | — |
| Indiana | 51 | 83.8% | 13.3 | — |
| Iowa | 18 | — | — | — |
| Kansas | 28 | 88.0% | 13.9 | — |
| Kentucky | 39 | 79.0% | 14.0 | — |
| Louisiana | 42 | 88.0% | 15.3 | — |
| Maine | 17 | — | — | — |
| Maryland | 68 | 82.1% | 10.9 | — |
| Massachusetts | 101 | 82.5% | 13.3 | — |
| Michigan | 79 | 84.0% | 11.9 | — |
| Minnesota | 56 | 80.1% | 16.2 | — |
| Mississippi | 11 | — | — | — |
| Missouri | 54 | 80.6% | 10.8 | — |
| Montana | 19 | — | — | — |
| Nebraska | 24 | 81.3% | 9.5 | — |
| Nevada | 10 | — | — | — |
| New Hampshire | 14 | — | — | — |
| New Jersey | 98 | 82.2% | 11.5 | $107,004 |
| New Mexico | 15 | — | — | — |
| New York | 207 | 82.4% | 15.3 | $106,780 |
| North Carolina | 95 | 85.8% | 9.1 | — |
| North Dakota | 7 | — | — | — |
| Ohio | 112 | 83.3% | 12.8 | $84,075 |
| Oklahoma | 18 | — | — | — |
| Oregon | 46 | 85.7% | 7.5 | $91,165 |
| Pennsylvania | 136 | 77.5% | 15.8 | $97,632 |
| Rhode Island | 8 | — | — | — |
| South Carolina | 42 | 79.8% | 8.6 | — |
| South Dakota | 10 | — | — | — |
| Tennessee | 57 | 81.2% | 11.8 | — |
| Texas | 184 | 81.7% | 12.9 | $91,800 |
| Utah | 25 | 90.9% | 12.1 | — |
| Vermont | 9 | — | — | — |
| Virginia | 111 | 82.4% | 12.8 | $62,437 |
| Washington | 46 | 78.6% | 6.8 | — |
| West Virginia | 8 | — | — | — |
| Wisconsin | 71 | 77.9% | 19.5 | — |
| Wyoming | 5 | — | — | — |
Paid report
USD 49 one-time: a disease and disorder specific organization vs the 10 closest named peers on top officer pay, expense split, reserves and revenue mix, with a filing link per peer; USD 79 adds the one-page comparability data sheet for the board file. Checkout opens shortly; the free lookup and pages work meanwhile.
NTEE group G as assigned in the Business Master File (code list). Codes can lag an organization's real activity; the paid report uses the 3-character code and lets you swap a peer once for free.